Tuesday, February 21, 2012

Random Goodness...Getting Past the Block

With Henry home with a slight cold, enough to have him laying on the couch directing orders towards me, I have no choice but to face a harsh reality.  I have been blocked with what to write about.  So much to say, no direction to go.  Here I am with photos of random happy images and no way to link them.

So, I throw caution to the wind and will provide you with an update on life where I last left you.  Hanging on by a thread I am very sure.  

My son Chris has undergone another test, this time an endoscopy.  Post endoscopy we did a weight check and found that he had actually lost 10 ounces in a few weeks.  Not good from the mommy perspective and his medicine for his ADHD was not really a concern.  That was at the beginning of last week and by the end of the week, I was taking off this particular medication to hopefully alleviate a mounting amount of anxiety and sleep deprivation.  The kid was seeing spiders!  

So here we are a little over a week after the endoscopy awaiting biopsy results and only a few days off of medication.  Is it weird to say that mentally he seems more relaxed and rested?  Now we are dealing with a new symptom for the GI doctor, but all in a days work, right?

That's the health update from the Wilcox house for now.  So to get me out of the funk of writing I took a few shots of things that are making me happy lately.  Let's ROLL!

For Valentine's day, Chris worked on this Rothko-esk card for me.  I love it so much, it will be framed very soon.


I have these hurricane lit jars in the kitchen that I filled with cheap plastic hearts for the holiday and up until today they were not driving me nuts.  Off to file them away for next year!


The CROCK POT is your friend people, it can be started in the wee hours of the morning, make your house smell yummy and when it comes to eating a meal, I almost always have a happy family!  This weekend was pulled pork then turned into a second meal of pork chili.  A double whammy of good food for this worn out mama!


While I may not splurge on chili beans, a new favorite table wine, Purple Cowboy, was a hit for me.

Now this one is driving me crazy...my hubby has decided to try and grow a pineapple.  Pinterest says it takes up to 24 months to grow one plant.  He assures me that this moldy water will disappear and give birth to a new plant.  I am giving him until the end of the week to find a new home for it or it goes into the TRASH!


The other things we are growing in the house are SEA MONKEYS.  Ever done this?  Really fun to watch but I don't know what happens next.  Any advice would be helpful.


My friend MEYER'S has a new Honeysuckle scent, heavenly!  I use it for everything and I don't care that it is expensive.  I mean really, I saved on the chili beans, didn't I?


Lastly, since my favorite gal pals aren't around with this past move, I have surrounded myself with gifts they shared with me.  This owl mug makes me smile.  Our chats do as well, but accompanied by a cup of coffee...well.

Okay, so I have written something, while not my greatest post to date, I have returned from procrastination.  Now I am off to harass the GI doctor.  Have a peaceful Tuesday.  

Sunday, February 5, 2012

Sunday Sanctuary...Endurance

I was so inspired by Laura over at Piece of Cake on Friday when she posted a "day in the life" for us all to read.  A long day that began in the dark and ended long after dusk.  I couldn't wait to steal her idea and write about my "day in the life".  By the way, reading her post here will really make you think.

So not the usual Sunday Sanctuary post for me but I have to warn you that the day that I expected to write about was not the day that occurred.  You can never think you have it all figured out that's for sure.

5:30 am
Eyes sealed shut, I climb over a child, girl I think to let the dog out to do business.  Back in to turn on the Kuerig and wait a whole 30 seconds to get my coffee in hand.  Twenty five minutes myself to think about the day and pray I can do better today with the kids than perhaps I did the day before.

5:50 am
Henry comes down a wee bit early, he says I was being too loud.

6:15 am
Twins come down for breakfast and we go over the plan for the day.  Eat, brush teeth, make beds, and make sure everything is signed in folders.  Spelling test today, so I pump them up.  



7:05 am
Head out the door to get the big boys on the bus.  Cecilia and Henry wait inside and knock at the window waving.  This is quite a game in our house.  Rush back in to clean up from breakfast and beg the two left to go and play so I can get some stuff done.  You know check e-mail to see if hubby sent anything!

7:50 am
As I turn on the I Pod, I realize I haven't actually downloaded a new song since 2008!  Second thought, I guess I don't care.  Listen to Macy Gray's I Try, sing a bit, wipe the table down, sing more, pick up crasins off the floor, La, La, La and load the dishwasher.  I try to remember the importance of this song...can't and still love it though!

On to take the trash to the recycling bin. (Readers this is real life for me)

Amos Lee singing Colors...

Think about making another cup of coffee.  Wonder where my two youngest are?  Better look for them after I make that second cup.  Meanwhile the music is still blaring.  I head off upstairs to tidy up rooms and open blinds.  Hit the last room, Henry's, and as I open the door I hit the trash can.  I look behind the door and find two 1/2 eaten pints of Haagen Dazs ice cream in the trash. Gross, and it is 1/2 melted. 


WHAT?

The food sneakers are in trouble.  I do wonder for a second where the spoons are.  Henry and Cecilia are now sitting at the table in the kitchen waiting in silence.  The music is off for added drama.  The internal question ...is this a lecture moment or a don't care moment?  How do I go about this?  I end up taking an ice cream privilege away next time we all eat it.  Oh, there were tears in their eyes.  I almost give in...yeah I know!

8:45 am
Load these two in the car to get Cecilia to preschool.  Great that we are about five minutes away.  I look at the giant number in my car window.  Perhaps the greatest invention for preschool parents, the car drop off line.


I wish I had this for the Ben and Chris when I had to drag a toddler and a baby every day five days a week.  All in the cold, rain and heat!  However I take one for the team and cherish this for all the others who are in the same boat I was back then.

8:55 am
Head back to the house and listen to a little Jack Johnson and Katie Perry on the way back.  Get Henry started on homework and reading.  I so enjoy this time with him.  We never get one on one time and I am usually rushing around doing other tasks.  With the move and the schedule going from full day kindergarten to half day, I am starting to really like the change.  After school stuff is completed, Henry begs me to call his friend Christian.  He worked all week on a note phonetically spelled, hoping to get his number on paper.  Ring, ring, "Thanks for calling Total Care for Women, if this is an emergency," CLICK.  I explain to Henry that Christian might not know his number.

9:30 am
The countdown begins.  With 40 minutes left until the bus arrives, Henry will ask every 30 seconds if he can go out and wait.  Silent prayer for patience.  This requires a distraction.  We look for chalk in the garage.  Do movers move bits of chalk.  Apparently the military movers move anything.  We find the chalk neatly stuffed into mason jars.  We play hopscotch while I chat in the phone.  I am ruthless at this game and continue to pummel him.

10:15 am
I wave goodbye to my busiest child and run to the car.  With all the stuff going on with Chris's health and the hubby gone for the past three weeks, I needed a little distraction and happily received one through an e-mail.  The kids and I were going to have a reunion with the first guy that I "think" called me a girlfriend, not a PAL, but a real girlfriend.  Over 15 years later, he has become so successful and life has taken him all over the world.  A brilliant lawyer married to a brilliant doctor with two gorgeous girls and still a great person.

10:35 am
Racing to the store, I am thinking about how good my life is and how much I have changed since high school.  All my judgement and grand plans changed.  I wouldn't change it for the world though.  But do I have time to lose 30 pounds in 3 days?  Gotta find something to wear that hides all the scary things that four kids will do to you.  YIKES!  I look at my clock on the cell phone and see that I only have one hour and ten minutes left before I pick up Cecilia at preschool.  What is close?

IF YOU ARE STILL READING...GOD BLESS YOU!  

I enter Target and hope that the store is not filled with neon, the seasons hot new colors.  Thank God for chiffon blouses.

11:45 am
I jump back in the car and make it into the car line. 


With a bit of time, I text my childhood friend the news for the week.  We both get a great laugh about the reality that I have not really been home that often over the last 15 years.  Man I miss Missouri a lot.  It seems like my hubby and I have been away forever.  Sometimes we sit and plan a future back there when he retires from the Navy.

12:10 pm
Cecilia and I head to the kitchen to make a mayo and cheese sandwich for her lunch and she chooses to sit on the front porch.  Chris's doctor calls to check on him and we discuss all the new syndromes that I have found.  He politely explains each one to me and suggests that I not go to page 2 of Google.  He assures me that we WILL find answers.

I prep dinner which only means that I have to pull out the meat to thaw.

For any of you reading that are not stay at home moms, you must be thinking that this day is torture.  I really have come to love this life, REALLY!

Cecilia pops in and I watch her do yoga with my mat ( I never use this).  



Truman the basset hound is now in downward dog position with her.  I watch and think about a green tea cleansing diet.  Pita and hummus it is for lunch.


Yeah, I know this is a giant hamburger that JUMPED out of the fridge!

Feeling even larger, I remember to RSVP late to a birthday party that Henry was invited to.  I ask if I can bring the rest of the kiddos cause hubby is gone.  On the message I let them know I will pay for the other three.  Maybe she will call back.

I take a deep breath and revel in the silence wondering if she is asleep.  Grab my lunch.

I run upstairs to pick up the closet and hang up my new shirt all while trying not to look at my non- cheerleader shape in the mirror.  My good friend Lulu says to moisturize every night and morning.  Mid afternoon and I realize I better get on that.  Cecilia helps me and she lets me brush her hair.  We pop into the laundry room to turn the dryer back on.  It seems a teeny weensy bit damp and any excuse not to fold it, well maybe ten minutes longer.

2:15 pm (already?)

I catch some fresh air when I check the mail to only find junk.  No bills today.  Inside to start the dishwasher, and look at the clock.  I only have 20 minutes left until all three boys come home.  I look forward to seeing their bus come down the street.  We go through our highs and lows of the day and check back packs and of course serve snack.

I receive an e-mail from Ben's teacher requesting a conference. Uh oh.  She would like to meet on Valentines Day of all days.

When the boys run in the door, I have requests for apples, bananas and jelly bellys.  I serve them up and chart Chris's day with him.  I write down everything he eats at school and how many times he goes poop and pee.  This is his life lately.  As I am checking backpacks and promptly throwing out papers, I find Chris's IEP draft to sign.  

Truman is chewing on Henry's ankle outside as I look out the window.  Ben loses a shoe to the dog while walking him.  I offer them more Jelly Bellys to console them.  Does the trick.  Realize that I am shoving them in my mouth as well.

3:30 pm
I send the second email of the day to daddy and fill him in.  I look out on the front porch and find Henry's new golf club bent in half.  No one will confess to doing this.  Sorry grandpa!  This leads me to  make the decision that we will have a quiet afternoon.  Ben needs to read.  Chris waits for a friend to walk by and find our house.  He won't leave the window.  Henry eats a second banana.  

5:00 pm
I decide to do prayer at dinner and they are a bit surprised.  Food is served and we begin to discuss our plans for the next few days.  The kids ask about mommy's old friend and they want to know HER name.  I explain to them that I really don't want them to embarrass me.  They giggle and mutter something about putting away criminals and how they are looking forward to eating out.

I close the kitchen, put them in front of the TV and all is good.  No need to bore you anymore with the day.  I already did.  

Whether you finished this or not, it was really good to keep a log of my life because what it taught me was that there are funny moments and sad moments and extraordinary moments in my day.  I just need to see them for what they are and start each day FRESH!

THANKS LAURA and LULU, you ladies inspire me.  You may be the only ladies who finish this POST!


Thursday, February 2, 2012

I Open Up, Finding A Connection At The Lab

Grand plans, even basic plans go out the window when "life" happens.  I have mentioned in past posts that my son has been going through a lot of testing to find a solution to his ailments.  Well, I guess I have to be more specific here for you all to get what the heck is going on.

Around a year ago he was diagnosed with Asbergers and ADHD after a few months of therapy.  Some adjustments with medication and good social skills reinforcement, has brought him a long way.  I guess my hubby and I had been so caught up in his mental health that we failed to notice his physical health was deteriorating.  A minor cold took us to his PCM and upon clarifying that all he had was a cold, we noticed what the doctors called hyper-pigmentation on his arms.  Hmm...



Looking into his file it was noted that he had only gained four pounds in two years.  Fast forward a long trip to D.C. and many tests with geneticists and endocrinologists, we only found that he was short stature and going to be a late bloomer.  People this is not a surprise, neither the hubby or I are tall and I spread my wings a little later in life too.

So many major things were ruled out and quite a relief.  However since November he still only weighs 40 pounds and his twin has gone from 52 to 56 pounds.


Fast forward again, we moved to Virginia and headed into our next step with the pediatric GI people.  Problem is that my son has become very sick (similar to a virus, minus fever).  Just can't keep anything down.  Six times in two months, no other symptoms except the yucky kind.  We have now undergone a brain MRI, x-rays, and more lab tests than I care to count.  Two more tests to come next week. 

 
The reality of all this stuff is this.  The hubby has been gone almost a month, I have three other kids to care for, and my son looks and feels very sick.  Strangers are starting to inquire about his health.  Throw in poor social skills and life is hard for him.

I have been sick with worry myself!

But today as we waited to be called back to the lab, we met a wonderful young man.  For some strange reason he looked strikingly similar to my son, with a definite age difference (twenty something).  He leaned in and asked him what he was in for and the flood gates opened to an eye opening conversation.  He directed most of his question towards him, relating that they were experiencing very similar tests and obstacles.  The wonderful man has been fighting a mysterious disease for ten months and somehow was giving hope to my son.  We all went back to the lab together and he yelled over from his chair, "Let's do this together bud."

While my son did freak out, we made it through.  He then went over to the man and with a little prompting said thank you.  I wished him luck and offered my support and prayers.  

Today on the way to get dinner for the kiddos we talked about our HIGHS and LOWS of the day.  When we got to my son, he said he met someone like him and that he was still happy about life.  Everyone cheered him on.

All the things we have been going through together doesn't compare to the time he had with this wonderfully brave man.  Funny how life works.

While I am still worried about my tiny little man, I feel like that connection was a blessing for the both of us.  

I know I shared too much, but I had to put it out there and fill you all in.  Thanks for reading this far.

As for all of you, I wish you health and happiness!